Dani (sylleblossom) wrote in deceased_ljers,
Dani
sylleblossom
deceased_ljers

  • Mood:

murbot, sparklesglow

I just wanted to post here that Maria (LiveJournal accounts: murbot, sparklesglow) passed away on November 13th, 2015 at the age of 22.

She had cystic fibrosis and had gotten a double-lung transplant on July 28th, 2008. In the time period leading up to her death, she had been diagnosed with chronic rejection and was in the process of trying to list for another transplant. She was fairly active in the cystic fibrosis community on LiveJournal in the earlier days, and was featured in Ian Pettigrew's books Just Breathe and Salty Girls: The Women of Cystic Fibrosis. She died within hours of her cousin Cristy, who also had cystic fibrosis and had also recieved a double-lung transplant.

Although we didn't get a chance to get to know each other in this life, we had several mutual friends on Facebook and LiveJournal. Nonetheless, I am saddened by her loss as I have heard so many amazing, positive things about her from those that knew her well.

Rest in peace, Maria.



Obituary: here
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