Her journal documents her journey with the illness, the documentary '65_RedRoses' that was made about her double lung transplant in 2007, and her life and her love. Her journal contains many links to articles that confirm her existence and her passing.
Eva Markvoort passed away on March 27th, 2010. She was 25.
Also 25, she passed away on October 15th, 2010. Confirmed here by her twin sister (locked entry, but membership is open) and also in an external obituary here. Original founder of the cystic_fibrosis community.
I urge anyone who is reading this to consider becoming an organ donor.